My Abi
My Abi
Disclaimer
Dedication
Legalities
Acknowledgements
Preface
Raising Awareness About Brain Tumours
For Parents
Preamble
Abi’s Birth
Our New Home
Chapter 1 - Missed Opportunities
Symptoms
Missed Opportunities
Admitted to Hospital
The Scan
Transfer
Surgery
Pilocytic Atrocytoma
Why?
Morphine
Recovery
CSF Leak
The Letter
Chapter 2 - Running, Jumping and Dancing
Costa Rica
Running, Jumping and Dancing
Spinning
Compassion
A Stark Reminder
Divorce
Chapter 3 - A Shock for Christmas
A Shock for Christmas
Meditation
Surgery Time
The Morning After the Day Before
Chapter 4 - Second Opinions
Something Left
Benign?
Abi’s Options
Second Opinions
Progression
Alternatives
Difficult Decisions
Chapter 5 - The Effects
The Effect on Abi
The Effect on Abi’s Sister
The Effect on Me
Peer Support
Tears
Writing
The Nature of God
Films, Festivals and Football
Fundraising
Chapter 6 - Scanxiety
Scanxiety
Second Opinions Again
Third Time Lucky?
Complete Resection
Unwinding
Scan Day
Results Day
Happily Ever After?
Tumour Free
Hope
Chapter 7 - Out of Control
Why Her?
Out of Control
Sarah and I Fall Out
Mum and I Fallout
Christmas Time
More Bad News
Yet More Second Opinions
Chapter 8 - Chemotherapy
Chemotherapy
Agreement
Port Catheter
Chemotherapy Begins
Three Weeks In
The Innocence of Childhood
Admitted to Hospital Again
I’m Scared
An Email to Abi’s Oncologist
Nasojejunal Fun
Free Again
Hospitalised Again
Chapter 9 - Tantrums
Tantrum
Carefree
My Birthday
Arrested
Chemotherapy Ends
Chapter 10 - Hope Shmope
Timeline
Hope Shmope
Facing Fear
Sarah
Two Beautiful Children
No Conclusion
Appendix
The BFG
Pilocytic Astrocytomas
BRAF
Childhood Incident Rates
General Incident Rates
The Funding Gap
Three Main Mainstream Interventions
Treatment Outcomes
Mainstream Trials
The Alternative Options
The Cancer Act
Convention on the Rights of Persons with Disabilities
Where Treatment Has Been Ordered by the Courts
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Chapter 8 - Chemotherapy
Chapter 8 - Chemotherapy
Chemotherapy tests your sanity.
Melissa Etheridge
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