Peer Support

I contribute to an online support group for parents of children with low-grade gliomas. I find it invaluable. My impression of the free market U.S. healthcare system is that it forces patients to find the best treatments available. So American parents of brain tumour children must conduct a significant amount of their own research. The result is they have a tremendous amount of knowledge that many are willing to share. That’s incredibly supportive; it means I have been able to ask all sorts of questions about Abi’s tumour, get opinions about her treatment and keep up to date with all the latest developments in brain tumour research. I’ve also been able to vent. Undoubtedly, there have been times when I might not have coped, were it not for the support of that group.